SETD5 Syndrome and You, book cover

For kids & families

Learn, play, and celebrate what makes you uniquely you.

A kids' guide to SETD5 Syndrome, with a short story to read, games to play, and activities to do online or print out and enjoy.

Read the book

Games & Activities

Fill in

All About Me!

Fill in your favorites, strengths, and what helps you, then print and share it.

Start
Color

Color Me!

Color the I'm SETD5 Strong picture, pick colors and tap to fill.

Play
Search

Word Search

Find 15 SETD5 Syndrome words hidden in the grid. Drag to highlight them.

Play
Navigate

Help Felix!

Help Felix the Helix find his way to the star. Arrow keys or drag to move.

Play
Puzzle

Crossword

Fill in the puzzle using clues about SETD5 Syndrome.

Play
Prepare

Health Hero

Get ready for your doctor visit, earn badges, and celebrate your strengths!

Start
Coming Soon!

Gene Quest!

Run, jump, and explore the amazing world inside you, collecting body pieces and building DNA!

Share

Community Voices

Share a message, accomplishment, or kind words to inspire other kids.

Visit