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Build Your Child's School Handout

Fill in your child's details and print a ready-to-share summary for school staff and IEP teams.

Step 1: What is this handout for?
IEP, 504 Plan, or School Meeting
For IEP meetings, 504 plan meetings, evaluations, or any meeting with the school team. Includes features and questions to raise.
Meet My Child
For a new teacher or staff member at the start of the year. Introduces SETD5 Syndrome and shares what helps your child.
Step 2: About your child
This educator may be unfamiliar with SETD5 Syndrome
Adds a brief introduction to the top of the handout explaining what SETD5 Syndrome is.

Appears on the handout to help the teacher connect with your child.

Strategies, supports, or approaches that work well.

What should a teacher or aide do when your child is struggling?

Step 3: Which features apply to your child?

Check anything that applies to your child, whether it has been formally diagnosed or is something you have observed or noticed. Only what you select will appear on the handout.

Learning & Communication
Behavior & Attention
Sensory & Motor
Health & Safety at School
Step 4: Anything else?

Anything else you want the school to know. Appears at the bottom of the handout.

Please check at least one feature before generating.

In the print dialog, choose "Save as PDF" to get a file.
SETD5 Syndrome · School Handout
School Handout
setd5syndrome.live
Gene
SETD5 (3p25.3)
Inheritance
Typically de novo; can be inherited (AD)
IEP Eligibility
Typically qualifies under IDEA
More Information
setd5syndrome.live
Features observed or reported by parent/caregiver
What the School Team Should Know

These items were selected by the parent or caregiver and reflect observed features. Features of SETD5 Syndrome vary widely between individuals.

    setd5syndrome.live
    For informational purposes only. Not a substitute for medical or educational advice. Content based on published research and the SETD5 Syndrome family community. Always verify with your care and education team.